Editor’s note: Any medical information included is based on a personal experience. For questions or concerns regarding health, please consult a doctor or medical professional.


Fibromyalgia ranks among the most puzzling and common chronic pain conditions. Fibromyalgia pain moves around from one area of the body to another or it seems to be everywhere at once. We experience several different types of pain. The intensity of the pain also changes. It can be very difficult to describe fibromyalgia pain to others. We often feel misunderstood and disbelieved.

It is hard for people who do not have chronic pain to understand how it is for us to live with it. Even those closest to us can not fully understand. They cannot and do not know the painful life we experience.

Fibromyalgia is a chronic illness most commonly known for causing widespread pain, fatigue and brain fog. However, the disease is complex – it can cause a multitude of symptoms and is often accompanied by comorbid conditions, such as irritable bowel syndrome (IBS) or chronic fatigue syndrome. Since fibromyalgia was formally recognized only a few decades ago, doctors are still learning about the illness and might not be able to prepare fibro patients for all the different symptoms they may experience.


To better understand the various ways in which this illness can affect people, we asked our community to share some of the physical symptoms of fibromyalgia that surprised them. Have you experienced any unexpected fibro symptoms? Let us know in the comments below.


Here’s what the community shared with us:

1. “Having a pain flare-up causes me to feel nauseous and so physically ill.”


2. “The relentless itching that pops up randomly, has no rhyme or reason, sometimes comes with hives or red spots. Itching that is insatiable and moves around from place to place.”


3. “The constant feeling of being tired. I sleep between eight and 12 hours a day and I’m still always tired.”


4. “Forgetting common words that I use every day.”


5. “[Having an] overactive bladder.”


6. “All the other medical conditions that come with it… migraine, IBS [irritable bowel syndrome], Raynauds phenomenon, chronic fatigue, insomnia and so many more. It is rarely a diagnosis on its own.”


7. “Skin sensitivity. If someone brushes past me even lightly it feels like I’ve been heavily hit.”


8. “Horrible menstrual cycles that leave [me] in bed with a heat pad on [my] stomach and gasping in the fetal position.”


9. “Feeling ‘loopy.’ I feel like I’m drunk. I even lose my balance while walking.”


10. “The occasional blurry vision even with glasses, like you’re seeing things through water.” Continue reading…

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