It is hard enough living with rare genetic incurable diseases. However, to know the only resource allowing you to get help isn’t on your side is terrifying. I constantly worry that one day, my insurance company will deny my treatments completely. It is difficult to let go of something that is affecting your health and everyday life. To those without chronic illness, my problem probably seems insignificant. I still get treatment, right? Yet they aren’t there to experience those painful flare-ups that my pain pills cannot handle. They do not have to endure the weeks of agony while their body is filling with waste. I truly believe this mindset is one of the big reasons why I and many others “can’t let go” of certain things. We can’t let go, because they can’t understand.